Living with Celiac Disease: A Comprehensive Patient Guide

Understanding, Managing, and Thriving with Celiac Disease

Gastroenterology

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Last updated: Mar 24, 2025

What is Celiac Disease?

Celiac disease is an autoimmune disorder where consuming gluten triggers an immune response that damages the small intestine. This condition affects approximately 1% of the population and can develop at any age.

Common Symptoms

  • Digestive issues (diarrhea, bloating, gas)
  • Fatigue
  • Weight loss
  • Anemia
  • Joint pain
  • Skin rash (dermatitis herpetiformis)
  • Neurological symptoms

Diagnosis

Testing Process

  1. Blood tests (tTG-IgA, EMA, DGP)
  2. Genetic testing (HLA-DQ2/DQ8)
  3. Intestinal biopsy

Treatment: The Gluten-Free Diet

Foods to Avoid

  • Wheat products
  • Barley
  • Rye
  • Most conventional oats
  • Hidden sources of gluten

Safe Foods

  • Fresh fruits and vegetables
  • Meat and fish
  • Rice
  • Quinoa
  • Certified gluten-free products

Living Gluten-Free

Reading Labels

Always check for:

  • Wheat, barley, rye
  • Modified food starch
  • Malt flavoring
  • "Natural flavors"

Cross-Contamination

Take precautions:

  • Use separate toasters
  • Clean cooking surfaces
  • Use dedicated utensils

Long-Term Management

Regular Monitoring

  • Annual follow-up with gastroenterologist
  • Regular blood tests
  • Bone density scans
  • Nutritional assessments

Complications to Watch For

  • Nutritional deficiencies
  • Osteoporosis
  • Other autoimmune conditions

Support Resources

  • Celiac support groups
  • Registered dietitian consultation
  • Online celiac communities
  • Medical alert bracelet consideration

When to Contact Your Healthcare Provider

  • Persistent symptoms despite diet adherence
  • New symptoms
  • Difficulty maintaining diet
  • Questions about medications or supplements

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